People wish we would just go away

By Dennis Rosen – It had been several months since I had last seen my patient, and even longer since I’d seen his mother. He was 3 and unable to walk or talk, and when I caught his eye, his face broke open into a huge smile, accompanied by the grunting and rhythmic thrusting of […]

Airlines could support special needs passengers more

by Christopher Elliott – If everything had gone according to plan, Eileen Schofield wouldn’t have been lost after she landed at the airport in Baltimore recently. But everything didn’t go as planned. First, a US Airways representative refused to issue a gate pass to Hannah Newmark, a volunteer assigned to meet Schofield. So when Schofield […]

Brother raises cerebral palsy awareness

by Joyce Ervin – A courageous and dedicated Hunter Gandee, 14, will arrive at Milan’s Veterans Wall of Honor on June 7 at approximately 8 p.m. with his little brother Braden on his back. He’s hoping Milan residents will greet them at the wall showing support for the awareness he hopes to bring to cerebral palsy, a neurological […]

Getting services for children with developmental disabilities is an on-going challenge for parents

Two Sumter mothers have bonded over children with developmental disabilities in the 20-plus years they’ve known each other. Nancy Gardenhire’s son, John E. Gardenhire Jr., whom everyone calls “LJ” for “Little John,” has cerebral palsy. “It’s been an interesting journey,” she said. “I wasn’t told about a lot of the services back then. A lot […]

Study reveals gene associated with cerebral palsy in preterm babies

In a study to be presented on Feb. 6 at 2:45 p.m. CST, at the Society for Maternal-Fetal Medicine‘s annual meeting, The Pregnancy Meeting-, in New Orleans, researchers will report that a variant in SERPINE1, a gene involved in inflammation and blood clotting, is associated with cerebral palsy and death in very preterm babies. This […]

Boy with cerebral palsy calls for equality and inclusion

by Britney Milazzo – Gareth Prebble hopes to one day connect the divide between the physically disabled and the rest of the population. A lecture hall full of people Thursday night at Waring Commons cheered when Gareth, 12, presented an essay he wrote with two of his teachers at Mount Nittany Middle School. Sixth-grade teacher […]

A moment on life with cerebral palsy

by Erin M. Kelly – I woke to the sight of a dull-orange sun bleeding through my bedroom window. I stirred under my covers for a moment before I noticed an eerie quietness upstairs. I waited for some all-too-familiar sounds: the soles of shoes making their way down the wooden stairs, the jingling of car keys, a […]

Five things people with disabilities can teach us

by Tiffiny Carlson – No matter the type of person, there are lessons to be learned from them. People with disabilities are especially influential, as our hardships in life aren’t easily forgotten. We go through every day with determination and strength, which many people are bowled over by, with many secretly wondering if they could […]

PresenceLearning’s Online Occupational Therapy Wins Tech & Learning’s 2013 Awards of Excellence

PresenceLearning, the leader in online speech therapy and other special education-related services for K-12 students, was recently named a winner of the Tech & Learning 2013 Awards of Excellence (AOE) for its online occupational therapy (OT) service. The service, which is delivered via PresenceLearning’s award-winning online therapy platform, was chosen in the New Products category […]

Kendall teen with cerebral palsy and epilepsy wants music for the holidays

Hildebran Companioni, a wheelchair-bound 19-year-old, suffers from cerebral palsy and epilepsy.

by Luisa Yanez – Hildebran Companioni is trapped in a body that shows him little mercy. The 19-year-old is wheelchair-bound with crippling cerebral palsy and epilepsy. Since childhood, he has endured violent seizures up to four times a week. “He has the worst kind of epilepsy, but with medication, the seizures have been controlled, which […]